Is there anything else I need to know about a PKU screening test?If your baby was diagnosed with PKU, he or she can drink formula that does not contain Phe. If you would like to breastfeed, talk your health care provider. Breast milk does contain Phe, but your baby may be able to have a limited amount, supplemented by the Phe-free formula. Regardless, your child will need to stay on a special low-protein diet for life. A PKU diet usually means avoiding high-protein foods such as meat, fish, eggs, dairy, nuts, and beans. Instead, the diet will probably include cereals, starches, fruits, a milk substitute, and other items with low or no Phe.Your child's health care provider may recommend one or more specialists and other resources to help you manage your baby's diet and keep your child healthy. There are also a variety of resources available to teens and adults with PKU. If you have PKU, talk to your health care provider about the best ways to take care of your dietary and health needs.
